Genetic Research
Who decides what medical research is done? Some genetic research can bring benefits to health, but is genetic research always conducted in the public interest?
Resources
- Press Releases
- GeneWatch PR: UK Biobank gets go-ahead: GeneWatch UK response 21st August 2006
- GeneWatch PR: UK Biobank based on false assumptions and a waste of public money, says GeneWatch 15th March 2006
- GeneWatch PR: GeneWatch UK calls on HFEA to make decisions on cloning in the open and not behind closed doors 29th September 2004
- GeneWatch PR: Main ethical questions about genetic sampling sidelined in biotech industry's favour: GeneWatch UK response to UK Biobank "Ethics and Governance Framework" 24th September 2003
- GeneWatch PR: Parliament finally talks about Biobank UK 2nd July 2002
- GeneWatch PR: GeneWatch response to Human Genetics Commission report on personal genetic information 21st May 2002
- GeneWatch PR: GeneWatch UK challenges the MRC, Wellcome Trust and Department of Health to allow an independent scientific peer review of Biobank UK 22nd April 2002
- GeneWatch PR: Doctors warned to press for safeguards before collecting patients' genes 14th January 2002
- Report
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Giving Your Genes to Biobank UK: Questions to Ask
1st December 2001
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Giving Your Genes to Biobank UK: Questions to Ask
- Briefings
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Briefing 35: Nutrigenomics: the future of nutrition?
1st March 2006
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Briefing 34: Genetic technologies: a review of developments in 2005
1st February 2006
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Briefing 32: HUMAN CLONING AND STEM CELLS: unravelling the issues
2nd June 2005
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Briefing 30: Genetic Technologies: A Review of Developments in 2004
1st February 2005
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Briefing 26: Genetic Technologies: A Review of Developments in 2003
1st February 2004
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Briefing 23: Pharmacogenetics: Better, Safer Medicines?
1st July 2003
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Briefing 22: Genetic Technologies: A Review of Developments in 2002
1st February 2003
- MPs' Briefing: Human Genetics No. 3 - Biobank UK – A Good Research Priority? 1st November 2002
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Briefing 17: Genetic Technologies: A Review of Developments in 2001
1st February 2002
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Briefing 14: Human Bio-Collections: Who Benefits from Gene Banking?
1st April 2001
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Briefing 13: Genetic Engineering: A Review of Developments in 2000
1st January 2001
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Briefing 12: Human Gene Therapy: A Cure for all Ills?
1st October 2000
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Briefing 11: Privatising Knowledge, Patenting Genes: The Race to Control Genetic Information
10th June 2000
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Briefing 35: Nutrigenomics: the future of nutrition?
- Articles
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Scientific paper by GeneWatch's HM Wallace
This scientific paper looks at how data from twins and families is analysed. It concludes that the usual method is likely to exaggerate the importance of genetic differences in common diseases such as cancer. Breast cancer, for example, could often run in families because family members are exposed to the same environmental or lifestyle factors, rather than because relatives share some of their genes. If so, expensive research studies may be looking for "susceptibility genes" which do not exist or will be impossible to find.
- The Guardian: 500,000 people, a span of decades - and a waste of time and money?
- New Scientist: One million people, one medical gamble
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The development of UK Biobank: Excluding scientific controversy from ethical debate
Abstract of an article by GeneWatch's Helen Wallace in the journal Critical Public Health. Please contact us if you would like a reprint of the article.
- The Observer: Scientist was paid consultant to tobacco firm.
- The Observer: Tobacco giant funds 'bad gene' hunt
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OpenDemocracy: A UK Biobank: Good for Public Health?
24th July 2003
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Scientific paper by GeneWatch's HM Wallace
- Consultation Responses
- Submission to House of Lords 'Genomic Medicine' Inquiry 21st April 2008
- Blood Spots From Newborn Babies: Consultation Response 31st January 2006
- GeneWatch submission to the House of Commons Science and Technology Committee
- Comments on the Report of the UK Population Biomedical Collection Protocol Development Workshop 1st October 2001