GeneWatch UK is a not-for-profit policy research and public interest group. We investigate how genetic science and technologies will impact on our food, health, agriculture, environment and society. These aims and principles explain why GeneWatch exists and what we are trying to achieve.
Genetic science and technologies are being promoted as the solution to problems as diverse as hunger, crime, climate change and cancer. GeneWatch UK believes that:
- An over-emphasis on genetic explanations and solutions to these problems can mean that underlying social, economic and environmental issues are ignored;
- Commitments to particular assumptions about science, technology, nature and society are often made behind closed doors, with insufficient public scrutiny;
- Consideration of the impacts of genetic technologies on the environment, health, animal welfare and human rights should be at the heart of decision-making.
GeneWatch UK's aims are to:
- ensure that genetic technologies are developed and used in the public interest and in a way which protects human health and the environment and respects human rights and the interests of animals;
- promote public involvement in the decisions that are made about science and about whether or how genetic technologies are used;
- increase public understanding of genetic science and technologies;
- carry out or support research about their impacts.
GeneWatch UK is working to increase public understanding of genetic technologies and to secure public, academic, media, investor, regulatory, parliamentary, local, national and international governments' support for a comprehensive programme to ensure genetic technologies are developed and used in an ethical and safe manner. This includes:
Improving public understanding, accountability and participation in decision making
- A balanced independent and open scientific research agenda.
- Effective public involvement in the decisions about whether and when genetic technologies should be applied.
- Systems to ensure people can exercise choice about whether to eat GM foods.
Protecting people, the environment and animals
- Protection of plants and animals from contamination by GMOs.
- The biotechnology industry to be held liable for environmental or economic damage caused through the use of GMOs.
- A ban on the patenting of genes, plants and animals to prevent their monopolisation compromising human rights and food security.
- Equity for people in developing countries in access to the benefits of genetic technologies and protection from genetic exploitation.
- A presumption against the genetic modification and cloning of all animals, both of which can lead to considerable animal suffering, and which should only be allowed if it will contribute significantly to the relief of serious human suffering and there is an absence of more acceptable alternatives.
- Effective national and international laws preventing biological weapons development because genetic engineering is seen as a way of improving the potential for their use and increasing the threat of their development.
- Protecting human rights and dignity
- Laws to prevent the misuse of genetic information including a ban on the use of genetic test data by insurers and employers.
- A guarantee of genetic privacy and the right of people to refuse to undergo genetic testing.
- Independent regulation of genetic testing and genetic databases.
- A ban on human reproductive cloning and human genetic modification.
- Promoting positive, safer alternatives
- Recognition that tackling lifestyle, social, economic and environmental health factors are often more important than genetics in preventing disease.
- Recognition that providing a healthy diet and establishing food security requires social, economic and political solutions and will not be achieved through technological interventions alone.
GeneWatch UK works by:
- Researching and analysing new developments in genetics and how they will affect people, the environment and animals.
- Clarifying and making accessible to the public, the emerging science of genetics and its implications.
- Communicating the issues to decision makers, the public, media and other organisations affected by genetics, such as farmers, doctors and businesses.
- Advocating and justifying practical measures to protect against adverse impacts of genetic technologies on people, the environment and animals.
- Intervening where most effective to see that adequate safeguards are introduced.
- Networking and alliance-building with a wide variety of organisations and individuals interested in human, environmental and animal health and welfare.
- Challenging the biotechnology industry and others if they produce misleading information.
Most of GeneWatch's funds for research and education projects come from charitable trusts. We have also received some research funding from the European Commission. A smaller amount comes from undertaking commissioned work usually, but not exclusively, for other groups in the voluntary sector who need our specialist knowledge. The remainder of GeneWatch's income comes from donations.
Dr Helen Wallace - Executive Director
Helen joined GeneWatch as Deputy Director in 2001, specialising in the ethics, risks and social implications of human genetics. She became Director in 2007. Helen has worked as an environmental scientist in academia and industry and as Senior Scientist at Greenpeace UK, where she was responsible for science and policy work on a range of issues. She has a degree in physics from Bristol University and a PhD in applied mathematics from Exeter University.
- GM Crops and Food
Environment ministers and officials at the Department for Environment, Food and Rural Affairs (Defra) continue to battle to keep the public in the dark over the GM industry's influence on their policy and media strategy. Read the GeneWatch press release and the Daily Mail.
Defra has approved a new field trial of GM camelina sativa, genetically engineered to have an altered oil content.
- GM insects
Brazil's regulator CTNBio has approved Oxitec's GM mosquitoes for commercial release. No risk assessment has been published and there has been no public consultation. Read the joint press release.
Experimental releases of Oxitec's GM mosquitoes have been approved in Panama. Oxitec's notification for the export of GM mosquito eggs to Panama includes no risk assessment, even though this is a legal requirement. Read the press release (also in Spanish).
- A DNA database in the NHS?
Read GeneWatch UK's report on the plan to build a DNA database in the NHS by stealth and share whole DNA sequences (genomes) with companies like Google.
As a first step in the plan, NHS England plans to share people's medical records with private companies without people's knowledge or consent. A new data protection law supported by the European Parliament would prevent heath data being shared for "research" (including commercial data-mining) without people's consent. But it has yet to gain the support of the Council, which includes the UK Government and is opposed by many internet companies who are lobbying against it.
Until the legal situation is resolved, Medconfidential has published information about how to opt out, from sharing your medical records using a letter you can send to your GP. You can also fax your GP in order to opt out.
- Genes and Health
As more evidence accumulates, more scientists are questioning claims that genes play a central role in health and behaviour. Read the blog by Arto Annila and Keith Baverstock and visit the BioscienceResource Project.
For a discussion of policy issues around plans to sequence the genomes of whole populations, read the reports of the EU project PACITA on public health genomics here.
- Genes and Marketing
China has announced moves to restrict sales of genetic tests
Read the Huffington Post on why the US FDA was right to crack down on Google-funded 23andMe's misleading gene test claims. US gene testing company GeneLink has also been forced to withdraw misleading claims following a complaint by the Federal Trade Commission.
The New York Times reports that different gene testing companies report contradictory results.
- The UK Police National DNA Database
The Protection of Freedoms Act entered into force on 31st October 2013. Most innocent people who are arrested will now have their DNA and fingerprint records deleted automatically but some will be retained for three years (or longer for national security reasons).
The Home Office has published the new rules for innocent people applying for early deletion of their DNA and fingerprints from police databases. The Guidance does not cover deletion of Police National Computer (PNC) records which continue to be dealt with under the old Exceptional Cases procedure.
- GM fish
GM salmon company AquaBounty has announced major losses and stated it wants to list on Nasdaq.
More US retailers have announced they will not sell GM salmon if its entry to the US market is approved by the FDA.
Environmental groups have filed a law suit against the production of GM salmon eggs in Canada. If commercial production proceeds, GM salmon eggs will be shipped to Panama for grow out and the fish will be sold on the US market. Regulators in Panama and the USA have yet to approve commercial production and import of the fish.
- HSE Contained Use Regulations Revision
Industry has been lobbying to create a loophole to allow GM micro-organisms, synthetic biology products and GM fish and insects to be released into the environment on an industrial scale under the Contained Use regulations for GMOs (Genetically Modified Organisms). Read GeneWatch UK's submission to Health and Safety Executive (HSE)'s consultation.
- Patents on seeds
To oppose patents being granted in Europe on plants such as tomatoes, broccoli and melons, sign the Avaaz petition.
- GM animals
Animal welfare groups have strongly criticised EU proposals to allow meat and milk from the offspring of cloned animals into the food chain without even labelling the products.
In China ECNS reports that a GM cow resistant to mastitis has moved closer to commercialisation.
- International DNA databases
GeneWatch UK, the Council for Responsible Genetics and Privacy International are working together on the Forensics Genetics Policy Initiative to develop international standards for DNA databases worldwide. Visit our website. Read the article by Associated Press.
- GM Contamination Register
An on-line database of incidents of GM contamination, illegal releases and adverse agricultural side-effects run by GeneWatch UK and Greenpeace.